Home » Erythro­melalgia: hotfoot [Part I]

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Erythro­melalgia: hotfoot [Part I] — 10 Comments

  1. Yeah, I think I’d take my tinnitus over that, although there’s no real hope of tinnitus ever going away (short of death). At least I can ignore it most of the time. And it doesn’t interfere with sleep.

  2. Mac,

    It does interfere with my sleep but once too far gone to stay awake I sleep deeply for 6 to 8 hours. Burning feet is a place I do not want to experience.

  3. These phones, drat. I just posted several suggestions to the post on this topic you did back in August, check please not interested in reposting too pooped.

  4. Oh Neo, that sounds awful. Coping with that must have been an ordeal.

    If misery loves company, once I had an episode where it felt like my body was being scorched on a radiator. It was really painful.

    After spending some time googling– my doctor had no idea what I was talking about– I decided it was probably a bizarre reaction to a medication. So, I stopped taking it and drank boatloads of fluids and tomato juice for the potassium, thinking it might help. It seemed to and after a few days it eventually it went away.

    But, 10 years with your feet on fire, oh god. I can’t imagine.

  5. This lasted for over ten years.

    [NOTE: This is the first part of a 2-part series.]

    … talk about cliff-hanger endings ! …

    I hope the second part tells us how itended — I can’t imagine being in such pain for 10 years, and remaining not only functionally sane but intellectually productive, as you have.

  6. We are so sorry that you have erythromelalgia. Have you any support or information needs?. Our non – profit org educates, EMpowers and embraces all those living with erythromelalgia and its comorbidities like fibromyalgia, lupus, arthritis ,etc. We also work hard raising awareness and raising funds to sponsor research. Join the EM Warriors website , Facebook or Twitter.

  7. It sounds a little like thalium heavy metal poisoning. Though Tl poisoning symptoms are a tingling and needle like pain in the feet, rather than hotness. Thalium is not a super rare toxin, but maybe rare enough to elude standard tox screens. Heavy metals can, in general, accumulate over long periods of time.

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